- Free treatment (Desferal and disposable material -
syringes, needles, etc-) for the most needed patients;
- Treatment equipment (infusion pump) donation and sale
at cost for patients;
- General care and referral of patients to professionals
and Hemocenters;
- Legal and psychological support;
- Meetings among patients and doctors;
- Updated records of all thalassaemic patients in Brazil;
- Updated records of all Hemocenters with a complete
list of doctors treating thalassaemic patients;
- Creation of the National Thalassaemia Committee, comprising
doctors working in this field, representing all regions of the country;
- Incentive to the formation of Abrasta regional groups;
- Creation of Thalassaemia Referral Centers in all regions
of Brazil;
- To get the Ministry of Health to ensure, at all levels,
that full ideal treatment is paid to all patients;
- To negotiate with the Health Ministry to have infusion
pumps available to all thalassaemic Major patients;
- To attend events in the Haemathology area, disseminating
information on the disease and its treatment;
- To annually hold an International Conference on
Thalassaemia, whose goal is to update doctors on the last advances
in research, medications and tests, with the presence of the most
experienced doctors in thalassaemia treatment in the world;
- To support medical training, helping Brazilian professionals
to attend international Thalassaemia meetings;
- To organize small trips with patients, trying to make
them aware of the importance of appropriate treatment. Find out more here!
|